On social media

talk with other patients

  • Tell your own story and listen to theirs.

  • Talk about what helped you and what didn’t. Be specific about your symptoms and avoid generalizations.

  • Talk about the hard conversations you’ve had. Talk about what no one gets about dry eye. Talk about what strategies you use when explaining your dry eye symptoms to other people.

  • Ask for strategies when talking to: friends, family, doctors, eye doctors, employers, coworkers, and strangers.

  • Share what you know now that you wish you had known earlier.

  • Talk about what’s missing for you and share back with how you’d like to see the dry eye landscape change.

  • Talk about what you learned from taking the Survey. Print out a copy and compare answers!

use a facebook support group

  • Introduce yourself by letting people know how long you’ve had dry eye, how it affects you, and what you wish more people understood. 

  • Ask if anyone uses the OSDI symptom survey and how they use it to communicate with their doctor.

  • Talk about your current needs that are not being met and ask for suggestions.

share about dry eye on social media

  • Share your Dry Eye Story

  • Post a photo of yourself or your dry eye routine and post about what dry eye means to you and how it impacts you.

dry eye stories

You could also look for someone in a group or on Dry Eye Stories who’s gone through a similar experience or who you think has something useful to say. Send them a message or comment on their story. If you’re willing to talk to people about your experience, say so in a group.

Rebecca PetrisComment